What is ALS?

MND or ALS

Motor Neurone Disease (MND) is the name for muscle diseases that affect the nerve cells. These neurons control the muscles, but gradually die off. Amyotrophic Lateral Sclerosis (ALS), progressive spinal muscular atrophy (PSMA), and primary lateral sclerosis (PLS) are muscular disorders which fall within MND. Although MND is the collective name for these syndromes, ALS is the most popularly used name in The Netherlands.

Continue my fight

Amyotrophic Lateral Sclerosis (ALS) was until recently an unknown illness. Since the launch of two successful campaigns “I have already died” and “Continue my fight” we have managed to increase the awareness of ALS in the Netherlands. The brand awareness increased from 20% in 2011 to over 90% in early 2014.

What is ALS

ALS is a fatal nerve and muscle disease. In The Netherlands about 1500 people suffer from ALS. Each year 500 people pass away due to the consequences of ALS and another 500 are diagnosed with ALS. The cause of ALS is unknown, and there is no treatment available. There is no hope for a future - with an average life expectancy of 3 to 5 years after the first symptoms – for these 1500 people. There is only one way to find a cure, scientific research. The ALS foundation in the Netherlands – Stichting ALS Nederland – is a fundraising organisation. We aim to raise money for scientific research, to find the cause and a cure for ALS. We have a clear focus on quality of life and care for ALS patients. But there is still much research needed to find the cause and eventually a cure for this merciless disease.

Stichting ALS Nederland

The ALS foundation in The Netherlands was established in 2005 and has set itself the following objectives: promoting scientific research to find the cause and a treatment for ALS, improving the quality of care and life of ALS patients and finally creating awareness and understanding of ALS. Fight for a world without ALS!